Skip to main content

Test Anxiety

T-minus 3 days until my next endoscopy.  You'd think with the sheer volume of times I've been through medical testing, it'd be no big deal.  Yet here I sit, waiting for Tuesday, 9 am, to arrive so I can get my esophagus checked out to see if this diet I've been on is actually working at a physiological level.

"Good evening, Clarice."
 I want to think it is, I am better.  But I still have some symptoms depending on what I eat - rice, for example, takes a bit to make it down the ol' pipe.  It could be something as simple as there's some narrowing going on from the inflammation I had so I need a dilation, or my gastroenterologist will every-so-carefully stretch my esophagus back to it's normal width with some type of tool that I don't even want to think about.  It probably belongs on Game of Thrones or something.

Full disclosure, I've watched about 3 1/2 episodes of GoT.  Enough to hate Joffrey like the rest of the world.  That's about it.

At least this isn't my gastroenterologist.
I do get propofol for sedation, so there's that.

My worry is she's going to see not much improvement and that while I feel better, the diet isn't right.  There might be other foods that could be causing me problems, so I could face another 6 weeks of eliminating even more foods and having yet another endoscopy.  I honestly have no clue what the plan is, and that makes it easy for me to go down the "what if" rabbit hole.


I tell people all the time not to go down that rabbit hole, or if they do, don't spend a whole lot of time there.

Medical testing is stressful, whether you're new to the whole thing or have been in the system for over a decade, as I have.  We say anxiety decreases with exposure to feared events because we learn that we can manage through situations that seem almost catastrophically bad and come out the other side relatively OK.  But for some reason medical testing is a different animal, and research backs up the negative effects it has on the body.

According to a 2011 American Medical Association article, between 8% and 26% of abnormal test results are not discussed with patients in a "timely" manner, even with the use of electronic medical records.  Depending on who your doctor is, patients can wait over a week for results, which may not be explained well or even left on a voicemail.

I remember when I was being worked up for Crohn's disease and the tests I went through, sometimes 2, 3, 4 times.  It was before the popularity of MyChart or other patient portals, and it was excruciating in terms of the wait, the phone tag, the anticipation.  I hear stories from clients about this dance with the health care system and the anxiety it creates.  For people seeking a diagnosis, waiting to only find out everything is normal can be a harder thing to hear than "you have [insert illness here]." I know that sounds strange in a way, but it also makes complete sense.

A few years ago I wrote about the Catch 22 of normal test results.  You can check it out here.  For Tuesday, I don't think I've wanted test results to be more normal in my life.  Here's hoping.

No Whammies!
 --T2




Popular posts from this blog

So You Have IBD During a Pandemic

Hey! What's going on? Been pretty boring over here in Chicago. Ok I don't need to elaborate on what the hell is going on in the world. We are being bombarded with information - some accurate, a lot inaccurate - about this pandemic. It's very easy to become completely overwhelmed by it all. We've been forced, pretty damn quickly, to completely overhaul our way of life for the greater good. To reduce the strain on our healthcare system of the sick and dying. And us humans are generally bad with rapid, monumental change that we really don't have a lot of say in. Our little reptilian brains do what they're supposed to do (prime us for fight or flight or freeze) but our advanced "thinking" parts of our brain have to interject with all sorts of unhelpful thoughts, thereby sending some of us off the rails. Before we start, turn off the news. Seriously. In the days following 9-11 we found people who consumed more 24-hour news channel information were mor

Psychosocial aspects of having an ostomy

This past Saturday, Tiffany and I had the honor of speaking at the United Ostomy Associations of America's Regional Midwest conference. I was assigned the task of speaking to the patients, and Tiffany addressed the partners or caregivers. I wanted to share with you some of the highlights from my talk. I only had an hour for my session, and with about 100 people in the room, it was not nearly enough time. I love bullet points, so here you go: We are all different! Every ostomate is different and not one size fits all for the emotional/mental aspect either. Who had months to talk about an ostomy and weigh pros/cons? Who was this a more sudden decision for? Who had cancer? Who had IBD? Something else? Who had an ileostomy? colostomy? urostomy? Who has a temporary? Permanent? Multiple temporaries? What age where you when you got your ostomy? Under 20, 20s, 30s, 40s, 50s, 60+ Who was single when they got their ostomy? With a serious partner when they had it? Some find a stom

IBD & Medical Trauma

Medical trauma is such an under-recognized issue for the chronnically ill. It's a hard topic to talk about because it can seem like we are pointing fingers at healthcare workers. Maybe that's why there are only, now, 4 studies on the topic in patients with inflammatory bowel disease (IBD). If you are someone who treats people with IBD please know I am not here to demonize or criticize. I am both a patient and a GI psychologist. I know the medical system from both sides. I know how messed up and broken it is. But ignoring this or rationalizing it away as only affecting a few folks is wrong. So let's talk about it. Post-traumatic stress (PTS) is the term we use for medical trauma due to technicalities in the Diagnostic and Statistical Manual for Mental Disorders (DSM-5) for post-traumatic stress disorder (PTSD). PTS can be less severe that full on PTSD, or it can be full on PTSD. Regardless, the symptoms are identical: Feeling hypervigilant/on-edge (increased