Skip to main content

Exercising for a Cause

On Saturday I ran the "Dash for Detection" 5K for the Michael Rolfe Pancreatic Cancer Foundation.  I was part of "Team Eric" and ran in memory of my internship training director, Dr. Eric Van Denburg, who died of pancreatic cancer in 2011.  We raised over $6,000 for pancreatic cancer research, part of over $160,000 raised this year via the 5K.


There are so many runs, walks, and bike rides over the summer that aim to raise awareness and money for a variety of conditions.  The most widely known are likely the Avon or Susan G. Komen breast cancer walks. Because not everyone has the advertising budget these organizations do, we'd like to highlight some smaller events happening in our area that you may be interested in joining or donating to.

Never run before?  Check out the Couch-to-5K training plan.

Airway Diseases
Fight for Air Ride, June 13-15, Crystal Lake IL to Lake Geneva WI.  Benefits the American Lung Association.

Battle to Breathe 5K, June 22nd, Wheaton IL. All profits raised will go toward the American Lung Association and its mission to save lives by improving lung health and preventing lung disease.

CowaLUNGa 2014 Bike Tour, August 2-4, Gurnee IL to Hubertus WI.  Benefits the Respiratory Health Association.

Cancer
Dan Horyn's Skokie Swift, June 8th, Skokie IL.  Benefits the Daniel M. Horyn Foundation for esophageal cancer research.

Bud's Run 5K, June 28th, Carol Stream IL. 100% of the proceeds after paying our expenses are given to the Sarcoma Foundation of America.

Tour for Cancer, June 28th, Freeport IL.  Benefits the Leonard C. Ferguson Cancer Center.

8th Annual Miles for Melanoma, July 12, Chicago IL.

Pennies from Heaven 5K, July 12, St. Joseph MI.  Benefiting young adults living with cancer.

12th Annual Run for Gus, July 24, Chicago IL. Event to raise funds for pediatric brain tumor research and Family Services programs at Ann & Robert H. Lurie Children’s Hospital of Chicago.

Celiac Disease
Alex's 5K RAGE, Sunday June 8th, Wheaton IL. 100% of the proceeds of this Team Gluten Free Event are going to the Celiac Disease Foundation.

Mental Health
Gina's Gallop 5K, Sunday June 8th, Arlington Heights IL. Gina's Gallop is a real reason to run, in memory of and in support of those who struggle with depression and thoughts of suicide.

Rally for Autism, August 16, Libertyville IL.  Benefits the Autism Society of Illinois.

Neuromuscular Disorders
Ride to Cure FA, July 20th, Channahon IL.  Benefits the Friedreich's Ataxia Research Alliance.

Organ Donation
Capital City 5K, July 26, Madison WI.  Benefits the National Kidney Foundation of Wisconsin.

Did we miss an event?  Let us know in the comments section.

Best,
Dr. T.

Popular posts from this blog

Game of Crohn's

There are 2 days left in 2017 and I've considered writing this blog post for most of the previous 363.  It's on a topic that nobody wants to talk about. Ever.

Let me start by saying Crohn's disease is a stigmatized disease.  A recent study found it's more stigmatized than HIV/AIDS and genital herpes among the general public.  And this topic, I think, takes that stigma and multiplies it by about 8.

Most people who know anything about IBD know it involves a few main issues:  diarrhea, abdominal pain, and sometimes blood in said diarrhea.  Because Crohn's is a giving disease, it also comes with a slew of other problems including joint pains, eye inflammation, skin inflammation, bone density loss, mind-numbing fatigue, and fuzzy toenails.

Ok maybe not that last one. 

Around 1/3 of us develop "fistulizing disease."  Or what I like to call body termites.  Fistulas aren't unique to IBD and can happen for other reasons, but IBD is a main source of the fistula…

The Long Shot

I don't even know where to begin as my head is still spinning with the news I received today.  So I'm just going to put it out into the ether:

Entyvio (vedolizumab), which I started for my Crohn's disease about 6 months ago, did what no other approach has:  cleared my eosinophilic esophagitis. 

But wait, isn't Entyvio a drug for inflammatory bowel disease?  Yes.

Is Eosinophilic Esophagitis a type of inflammatory bowel disease?  Nope.

Are IBD and EoE related at all?  As far as we know today, no.  There are very few overlapping cases.

So WTF happened?

Without getting into the biomechanics of a drug that's way over my pay grade in medical understanding, my gastroenterologist had a theory that the way Entyvio works would block the cascade of eosinophils (a part of your immune system, a type of white blood cell) through it's magical way of selectively keeping my immune system from attacking my digestive tract.

She was fucking right.

Since being diagnosed with EoE in ear…

Bubbles

I've been thinking a lot about how we live in an era of infinite access to infinite information (thanks, internet tubes!) yet we still fall into many of the well-established psychological laws, if we can call them that, of human behavior.  Don't worry, this isn't going to be some drawn out post on social psychology. Wikipedia is great for that.

I want to talk about bubbles.  Information bubbles, that is. And how each one of us lives in one to some extent, no matter how educated or enlightened we see ourselves to be. And even if we know we live in said bubble, it takes being shown information that directly conflicts with how you think things are, or should be, and the result is you feel kinda ew - the technical term for "ew" being cognitive dissonance.

I live in a bubble.

In my bubble is the world of academic medicine, academic health psychology, and a circle of psychologists dedicated to people living with chronic digestive illness.  I live in Chicago, a major me…