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Thursday, November 1, 2012

NHBPM #1: Here we go!

4:49 AM Posted by Tiffany Taft , ,
Today marks 2 pretty important events for Steph and I on our journey.  First, it's November 1st which marks the first day of the WEGO National Health Blog Post Month (NHBPM).  We're so glad to be a part of this and look forward to finding new blogs, learning, and connecting with others in the healthcare social media world.  What a great idea and thanks WEGO for arranging it all!  Follow the movement on Twitter #NHBPM and via Facebook.  If you or someone you know blog about health, sign up and take the challenge to write 30 posts in 30 days.

Second, we're hitting the road today to Cincinnati for the first annual CURED Foundation patient education symposium.  After a lovely drive through Indiana and Ohio, we hope to hit up some Skyline chili and get settled in for a really busy weekend.  Friday is the continuing medical education portion of the conference, where we'll learn the most up-to-date findings on Eosinophilic GI Diseases (EGIDs) and meet with some of the world's leading experts in the field.  We really hope to advocate for increased attention to the social and emotional pieces of these conditions for both kids (and their families) and adults living every day with an EGID.  I'm really proud to be the first person to publish studies about how EGIDs affect adult's quality of life.  But there is much work to be done.

Saturday is focused on the patients and their families.  Steph and I have 2 talks.  One is with adults living with EGIDs and the other is about caregiver stress in parents of kids with EGIDs.  Our PowerPoints are ready (and are hopefully not too snooze-inducing).  I'm excited to share what we found when we surveyed parents, especially because many of the people who participated were recruited from the CURED Foundation membership.  CURED has been pivotal in supporting this research and it will be nice to give a big thank you to everyone.

Time to pack!